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Off Enbrel Options
smith-j
#1 Posted : Monday, May 10, 2010 8:29:22 PM Quote
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Joined: 12/3/2009
Posts: 714
Hi everyone

I started on Enbrel injections about two months ago but unfortunately I have failed miserably. The Enbrel is causing bad skin infections. I stopped it for a couple of weeks and the infection cleared up. Started again a week last Saturday and the same has happened again. The Rheumy Department have this afternoon decided I must be allergic to it.

Barbara if you are reading this post I hope that Enbrel is your saviour. Each person is different and you will hopefully be ok on it.

However, there is some light at the end of the tunnel. They are going to get me in to see the Consultant again to discuss changing over to Humira. As I have had a bad reaction to Enbrel within the first six months, apparantly I am able to change over.

We had a visitor at work today and he asked me why I was walking with a walking stick. I explained I had RA and he said "me too". It is the first time I have ever had chance to talk to someone face to face with this disease and to be honest I could have talked to him all day. It was so good to be able to swap stories and actually have someone understand what we go through with RA. He is on Humira and had a dramatic improvement within days of taking it. He still has mobility problems but feels a lot better in himself so I am keeping my fingers crossed.

I know quite a few of you on this sight are on Humira so I am hoping this choice will be the right choice. For me to keep on working, they are going to have to come up with a solution as I am starting to really struggle even being able to work from home two days a week. I am the only bread winner as my Husband had to take early medical retirement so I really need to keep the money coming in. I love my job and would feel totally lost without it. I just worry that if I did have to give up work, what are the chances of getting benefits nowadays.

Anyway hopefully Humira will be my miracle "cure".

Jackie
xx
dorat
#2 Posted : Monday, May 10, 2010 9:24:01 PM Quote
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Location: Huddersfield
Hi Jackie,

Sorry you've had to stop the enbrel , lets hope humira really is THE one for you and you don't have to wait long to get on it.
That's a coincidence meeting someone who has RA.
Is he a member of NRAS?

Love, Doreen xx
Kathleen_C
#3 Posted : Monday, May 10, 2010 9:40:38 PM Quote
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Location: Durham
Hi Jackie,

I`m really sorry the enbrel hasn`t worked out for you, and I hope you have better luck with humira. For me it`s been great, so I hope it does the trick for you.

Take care,

Kathleen x

joeyvt
#4 Posted : Tuesday, May 11, 2010 9:13:12 AM Quote
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Location: Bristol
hi Jackie,

Humira is a fantastic drug and I hope it does the trick for you!

Joanna
smith-j
#5 Posted : Tuesday, May 11, 2010 12:34:54 PM Quote
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Doreen

He had not heard about the NRAS. I fully informed him what a wonderful bunch you were and how he would be able to learn so much more about RA from
real people as opposed to Doctors. I also said he could get comfort and support as well as having a good old fashioned laugh. Hopefully we may have one
more male member soon.

Jackie
xx
Damned76
#6 Posted : Tuesday, May 11, 2010 1:04:52 PM Quote
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Hi Jackie - sorry the Enbrel did't work out. Did they give you any idea when you might be able to see anyone about the Humira? Will be keeping my fingers crossed for you.

Julie xx
Glenys-H
#7 Posted : Tuesday, May 11, 2010 8:21:07 PM Quote
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Joined: 12/4/2009
Posts: 336
hello Jackie, I hope that you get sorted quickly it's such a worry even more so when you are the main bread winer. Glenys.
Rose-B
#8 Posted : Tuesday, May 11, 2010 9:31:33 PM Quote
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Joined: 4/20/2010
Posts: 1,749
Location: Somerset
Hello Jackie

Read your story . Sorry the present drug not good for u. Hopefully you will get sorted out quickly.

I am in similar situation where by in between drugs and I understand it is not easy is it.

Good luck
smith-j
#9 Posted : Wednesday, May 12, 2010 12:55:46 PM Quote
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Posts: 714
Thanks for all your kind replies.

I have to wait for an appointment with my Consultant to change from the Enbrel to Humira. Once I had approval last time, the funding was authorised in a week and the Nurse came out to see me to show me how to inject the following week. I was very impressed with how quick it was all dealt with. Hopefully the appointment's bureau will be as efficient.

Jackie
xx
jeanb
#10 Posted : Wednesday, May 12, 2010 1:39:26 PM Quote
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Posts: 3,006
Location: Timperley
Hi Jackie

Hope the appointment doesn't take too long to come through and very sad to see that enbrel isn't "your" drug.

Wishing you every success with Humira. Loads of people have been helped so much by it.

Love Jeanxxx
jenni_b
#11 Posted : Wednesday, May 12, 2010 4:49:30 PM Quote
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Posts: 2,237
Location: nr Southampton
so sorry it hasnt worked out jackie, im afraid i have been where you are many times and it is just, er, well, frankly i feel gutted.

i am soo sooooo pleased you have other options. the humira has been a life line to so many people and it seems it has a very different chemistry to enbrel and could be your magic medicine.

please GOD let it work this time.

love to you

jenni xx


how to be a velvet bulldoser
tinamarina
#12 Posted : Thursday, May 13, 2010 9:28:54 PM Quote
Rank: Newbie

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Joined: 12/3/2009
Posts: 3
Location: Dublin
Hi Jackie

Sorry it hasnt worked out for you, I am on Enbrel too and having skin problems, what kind of skin problems were you having - I think I might be allergic to it too. Hope the Humira works for you

Tina
Joy
#13 Posted : Friday, May 14, 2010 12:48:46 PM Quote
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Joined: 12/6/2009
Posts: 84
Location: Northern Ireland
Hi Jackie

Sorry to read you have had to stop Enbrel, when I started it I had skin reactions thankfully when my system got used to it I was able to continue on it. Fingers crossed Humira will do the trick for you.
Joy
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